I'm Not a Doctor, But I Play One on TV






I am in no way a medical professional. Information provided is just my experience. If you need medical information, please contact your doctor.

Thursday, March 25, 2010

Endoscopy OVER!

We are finally home and settled in!  I am beat.  I know we are all gonna sleep well tonight.

We arrived at the hospital about 15 minutes early.  By the time we got there Westin's blood sugar was sitting at about 170.  We struggled all early afternoon to get it up but we made it.  :)  We were shocked when we got to our room to find out that the sedation would take place there, the scope would take place there and the recovery would take place there, all in the same room.  Our last experience was at U of M and it was more of a big room with dividing curtains.  They did everything in a different area and then returned for recovery.  We were not able to be with him until he was well awake.  I thought it was a good experience until this time.  Wow, it was great.  We were in a little waiting room right across the hall.  We were back in the room with him as soon as we were done speaking with the doctor.  We were able to comfort him while he started to wake.  I really couldn't have asked for more other than an answer to his problems.

Everyone was very accommodating with his diabetes.  The nurse shared a cute story with us before we left that I want to share because I think the other diabetes parents will get a kick out of it.  Westin had a continuous glucose monitor on him and the nurse used his meter to check him when they were done with the procedure.  He was 134 and she said she would tell us what his blood sugar was.  Then Dr A (the gastro) spoke up and said, "No, I will tell them."  Then the anesthesiologist jumped in and he wanted to be able to tell us.  She said they were like two school boys fighting over it.  I had to chuckle.  I chuckle now thinking about it.  

Oh, the anesthesiologist won, he got to tell us!  :D

Dr A came in and told us that everything actually looked normal.  He took lots of biopsies so they might tell us something but I am not holding a lot of hope.  The good news is that he doesn't appear to have EE (eosinophilic esophagitis) which was believed to be the cause of his swallowing issues.  Now we believe it might have just been drainage causing the trouble.  :)  Small intestines looked good so celiac seems to be well under control.  :)  Stomach lining looked fine, esophagus looked fine.  So we had a little brainstorming session with him, kind of a pow wow.  Jason went over his symptoms and mentioned a hand full of things I have read about online.  (I read so much that I don't share with Jason that it all starts to run together for me so I am glad he was there)  We talked about what tests to do next.  He is going to try to get the breath tests for fructose and lactose moved up.  He was gonna go back over the upper gi and see if something was missed.  He left us to head back to his office and pour over Westin's history.  Oh, but not before Jason strong armed him into writing a RX for something that might help.  Something that will coat is stomach before he eats.  Maybe it will help, maybe it won't but Jason couldn't stand the idea of not having something to try and to offer Westin.

I would say that we were in recovery for about an hour.  But before we left we swung by a friend's room to visit him before we left.  By the time we filled the RX and picked up some gluten free crackers we got home a little after 8pm...what a long day!  

We are very lucky to have great doctors.  We struggled to find a gastro we really liked and I couldn't be happier with Dr A.  I feel very, very lucky.

Thank you to everyone for sending us their positive energy.  Have I said how lucky I am to have great friends too?  Well, I feel very blessed.  :)

PS...pancreas blood work came back normal.









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