Good Friday Wrap-Up

Well, Westin's swallowing problems have held steady this week. When I ask how his swallowing is on a scale of 1 to 10, 10 being perfect, he gives it an 8. That works for me. I imagine we will continue on the dairy free diet for another week and maybe stop the proventil to see if that changes. I will give the gastro a call on Tuesday.

The vacation is still in the works but Jason seems to think that my idea is a bit too much. He thinks we should get our feet wet a little closer to home. So if I had to pick a place a little closer to home than say Arizona, I think it would be South Dakota. I have so many fond memories of South Dakota from my trip as a kid. Mt Rushmore, Crazy Horse, Wind Cave, etc. It is a great place. The only reason we wouldn't do that trip is if we are granted a scholarship to the childrenwithdiabetes.com Friends for Life Conference in Walt Disney World, Florida. That would be a dream come true and it would be "the vacation" this summer. It is in July and is a huge diabetes conference. I have always wanted to go but the timing has always been hard as it is a busy time of year for business.

Speaking of business, the shop is officially closed and cleaned out. We have a mess at home to sort out but I think it will free us up to do more of what we would like to do...live life! Jason will be returning to working out of a trailer and just part time. The goal is to make enough to live off of but to have time to explore other interest and eventually get out of the business all together or at least manage it from afar. We will see where it takes us. I guess I should start a master calendar with all of our dr appointments and such so we can plan ahead a little farther. Maybe we could squeeze in both the trip to South Dakota and FFL if we were chosen? I really just strive for great learning and teaching opportunities with my boys and myself. :)

Friday Wrap Up

This has been one hell of a week! Last Saturday at about 1pm Westin came out of his room thinking he was having a low blood sugar. He checked and he was 73. Not low per say but treatable. I was doing dishes so I gave him a juice box and went back to the sink. A few moments later he walked out to me, sat the juice box down on the counter and tapped me on the arm. I turned to look at him to find he was in the midst of a partial seizure affecting his left side of his face. I was amazed that he could walk out to me and stand there while he was having it. It makes sense though as it was just a part of his brain seizing.

So then on Sunday his difficulty swallowing returned in a big way. It had kind of started days earlier but Sunday it was bad enough that he was upset by it. I called the gastro on call and got a script for flovent called in. So my kid with asthma has to use another inhaler, but this time he has to swallow it.

After playing back the last few months, since we stopped the prevacid, trying to figure out what caused the change in swallowing, we have decided either allergies or milk. So we stopped all dairy. Well, Westin stopped all dairy. I have also added a antihistamine to help with the extra post nasal drip due to the time of the year. Believe me, he is on plenty of allergy meds already. But he did complain about thick mucus and drainage. I read somewhere online that the post nasal drip could contribute to increased stomach acid, which could be causing the esophilic esophagitis (sp?). So I am going after both options at once. If we see some relief we will stop the flovent and see if we continue to see relief. If we do then we will re-add dairy and see what happens. Ugh, playing guinea pig with your kid is not fun!

Then on top of all of this he has had this tremor in his lip when he eats. I have to wonder if it is a residual effect from the seizure? It seems to be slowly going away.

So, this week can be written off as for the dogs. We did ZERO school work as I couldn't concentrate and neither could Westin. I am so glad he isn't in school. That would be a nightmare.